the patient celiac

Participants Needed for Study of Emotional Aspects of Celiac Disease

0 comments September 25, 2017

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Did it take five years (or more) following the onset of symptoms before you received your diagnosis of celiac disease? Are you over the age of 25 and willing to share your experience? 

 

My colleague, Heidi Maxwell, who is a doctoral student of clinical psychology, is seeking participants for a study about the emotional sequelae associated with the experience of severe unexplained symptoms of celiac disease over an extended period of time.

 

Willing participants must be 25 and over with a medically confirmed diagnosis of celiac disease for which the diagnosis was not confirmed for at least 5 years following the onset of symptoms. Participants must be able and willing to participate in a 60-90 minute in-person or skype interview. Participation will contribute to the literature about the impact of misdiagnosis and delayed diagnosis on psychological well-being.

 

The risk of participating in this study is that it could bring up memories of experiences that are emotionally triggering. However, the benefit is that you will have an opportunity to share your experience to inform medical and mental health practice.

 

This study is voluntary and all information kept strictly confidential. You may withdraw at any time without penalty. There is no compensation for your participation. However, your efforts will make lasting contributions in the field of psychology.

 

The study has been approved by the National University Institutional Review Board. This study is being supervised by Dr. Peter Van Oot, dissertation committee chair and a faculty member at John F. Kennedy University.

 

Please feel free to extend this invitation to anyone you know who may be interested.
 

If you have any questions, please do not hesitate to contact Heidi at 707-474-8487 or celiacstudy@outlook.com.

 

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