the patient celiac

You can run from celiac disease but you can’t hide…

6 comments September 28, 2016

I've been off the radar the past few months because we've been transitioning AGAIN. We moved from Boston back to my hometown of Cleveland in August, and since that time I've been focused on settling into our new home, getting all four of our kiddos adapted to their new school, trying to maintain my sanity, etc. Just like last summer, I ended up taking a much-needed break from reading scientific journals about celiac disease, reading others’ blogs, writing articles, etc. Celiac disease has on my back burner and I sort of thought it was going to stay there.
But, as I’ve been orienting for my new job position at the Cleveland Clinic over this past week, I’ve experienced several signs and reminders that I do indeed belong in this celiac/GF world after all:
1. At my electronic health record/computer training last week I ran into an acquaintance from medical school who I last saw in 2002. We were able to catch up over lunch and it ends up she's an adult gastroenterologist who just moved to the area–so, I now have a new friend and new GI doctor.
2. Within 5 minutes of sitting in the physician lounge at one of the community hospitals I will be working at I was involved in a conversation about GF dining, learned that one of the MDs who is high up in administration also has celiac disease and that there are several with non-celiac gluten sensitivity on staff.
3. I forgot to request a GF lunch at one of the buffet luncheons during a large orientation session but came to find out that the caterers always prepare 2 or 3 GF plates which are saved in the kitchen for people like me who forget to mention anything ahead of time.
4. The first article that I came across on the Cleveland Clinic wellness center webpage was a synopsis of an article about research about non celiac gluten sensitivity. I learned that there is compelling evidence that gluten ingestion can cause immune system activation and inflammation in individuals who do not have celiac disease (see link). This is the first that I had seen this info published.
5. I logged onto my email and Facebook accounts associated with this page and learned that I have more messages and blog comments to reply to than I can count…which means that, despite my hiatus, people are still finding my page and reading.
And so on and so forth…
I am re-invigorated and ready to plunge into this celiac/NCGS/GF world once again. I hope that you’ll continue to join me on the journey and also visit my new brand new website (more to come in upcoming weeks).
Thank you and Happy Autumn!

 

Comments
Sharon
Hi Jess,

Great news that you’re in Cleveland! Maybe you can also find yourself a functional medicine doctor at the Cleveland Clinic:

https://www.functionalmedicine.org/AboutFM/Initiatives/ClevelandClinic/

You may find some surprising answers that may help you on your journey…good luck!
10/7/2016 4:43:28 PM
Patrick
Hi Jess, welcome back!
As to item #4 being that I have some arthritis I’ve known for some time now that avoiding wheat, in all it’s forms, reduced my inflammation. I think I originally read it in a study that was done on people’s immune response when consuming fast food such as McD’s. Unfortunately it’s hard, for a non ceiiac, to give up that nice fresh baked bread!
Looking forward to more from your blog.
P.
10/7/2016 4:43:02 PM
Amy Ratner
Hi Jess,
Good to see you back. Two moves so close together must have been challenging. I’ve also had some changes. We should catch up.
Get in touch when you aren’t busy.

Best,
Amy
10/7/2016 4:41:59 PM
christine
so glad you are back…looking forward to your new website and always great in-site and information!
10/7/2016 4:41:25 PM
Vik
Jess, so good to see you! And yay, I even got an email notification of your post!
10/7/2016 4:40:27 PM
Laura
So excited to see you’re in Cleveland now! I also work at Cleveland Clinic as a pediatric pharmacist, and have celiac disease. Maybe we’ll run into each other at some point!
10/7/2016 4:38:15 PM
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