the patient celiac

Chapter 13

4 comments November 10, 2015

I recently downloaded the book Gluten Free: The Healthy Lifestyle Guide to Gluten Free Diets, by Emily Hoskins, onto my tablet. It was only $2.99 on Amazon and my reader who recommended it insisted that I would enjoy it a lot (she did not state why).

As I scrolled through the table of contents I was given the impression that this book is geared toward gluten-free "newbies" as the chapters deal with topics including an overview of celiac disease, an explanation of some commonly used gluten-free flours, tips for dining out when gluten-free, etc. I was happy to see that chapter 12 discussed that celiac disease can effect the brain, as the relationship between celiac disease and nervous system symptoms is under appreciated.

My jaw then dropped when I saw that the title of chapter 13 was "The story of Jess Madden: a Doctor and Coeliac Patient" because I realized it was written about me.  This was a total surprise as I had never heard of the book, that had been published in 2014, until about two weeks ago, nor had I ever met the author. And, to my knowledge, I have never been the subject of a book chapter up until now.  Most of the information in the chapter came from directly from an interview that I did for Gluten-Free Living Magazine last year, and Ms. Hoskins gave an overview of my blog in the last two paragraphs.  I was very surprised, but also flattered, to be included in this book. The link to purchase the book, which is currently $2.99 for the Kindle version, and $9.97 in paper book, can be found here.

There are also a ton of other great books about celiac disease and the gluten-free lifestyle. Some of my favorite books include the following:

  1. Real Life with Celiac Disease by Melinda Dennis and Daniel Leffler (2010).
  2. Gluten Freedom by Alessio Fasano and Susie Flaherty (2014).
  3. Understanding Celiac Disease by Naheed Ali (2014).
  4. Celiac Disease: A Hidden Epidemic (Updated, Revised) by Peter Green and Rory Jones (2010).
  5. Celiac and the Beast: A Love Story Between a Gluten-Free Girl, Her Genes, and a Broken Digestive Tract by Erica Dermer (2013).
  6. Gluten Free Family Favorites: The 75 Go-To Recipes You Need to Feed Kids and Adults All Day, Every Day by Kelli and Peter Bronski (2014).
  7. The Gluten-Free Edge: A Nutrition and Training Guide for Peak Athletic Performance and an Active Gluten-Free Life by Peter Bronski and Melissa McLean Jory (2012).
I hope you enjoy some of the books as much as I did :) If you have any favorite GF books, please feel free to put your recommendations in the comments section below. Thank you!



In reply to monique.
HI Monique,
You are funny…perhaps this is my 15 min of fame?
7/19/2016 5:12:36 PM
In reply to Amy.
HI Amy,

Yes, I do remember you :) I am so glad that your MRIs have stayed stable.
There’s been enough research over the last few years to show that, yes, that non-celiac gluten sensitivity (also called wheat sensivitiy in some papers) is a real diagnosis. It is unknown if it is autoimmune, or really what causes it.

That being said, MS is associated with AI conditions, like AI. There are some adults who do chose to be 100% GF and live their lives as celiacs even without a firm diagnosis. I think that no matter what you do that it be best to never, ever cheat, because if you do actually have celiac and consume gluten you could cause real damage.

It sounds like you are plugged in with a neurologist who you trust and that is great too. I wish you well.

7/19/2016 5:12:17 PM
you are famous!
7/19/2016 5:12:01 PM
Hi Jess, A year ago I wrote to you. MY name is Amy, 52, have MS and Celiac?! Reminder – the end result of my endoscopy was that my villi were laying down for idepathic reasons – end of story. I returned to my Gastro Doctor to assess the repeat of the colonoscopy – always fun. Interestingly, he referred to me being Gluten Sensitivite. I asked my Nueologist at my yearly if I should consider asking to have an endoscopy with a gluten load prior!? He said No. It would not change how/what I eat. Did I need a formal diagnosis !? My basic thought is, No. I am doing great. Feel better Gluten Free and a according to MRIs – I am stable with NO change!
Do you see any reason why I would need a formal diagnosis? And is Gluten Sensitive a “thing”.
7/19/2016 5:11:32 PM
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