the patient celiac

Moving Time

20 comments June 11, 2015

My kids had their last day of school in WI yesterday and we are in the midst of getting ready to move to Boston next week. I have had limited time to dedicate to this page as I have prepared for my family's transition, but I plan to be back to posting once we are settled in. We have a lot of family in Boston (my husband grew up in a suburb of Boston), I did my pediatric residency training at UMass, and I will be working in two NICUs that are a part of the Boston Children's Hospital system starting in July. I am optimistic that the stress of the move will be well worth it in the end…it just needs to snow a tad less than it did last winter!

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I am going to continue to take my probiotic

18 comments May 21, 2015

I did not intend to write a post this week, but after reading numerous articles, blog posts, and comments regarding a recent study from the Celiac Disease Center at Columbia University showing that some probiotic formulations contain traces of gluten, I felt compelled to write this...Please bear in mind that this research has not yet been published, so all of the information I have obtained regarding the study has been from press releases, such as this one. The research findings were presented at the DDW (Digestive and Disease Week) conference this past weekend in Washington D.C. but I do not personally know anyone who attended who I could converse with.

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Celiac Disease Research Awareness

0 comments May 07, 2015

I've come across many recent headlines stating that scientists are working toward finding a “cure” for celiac disease, including this recent article.  In actuality, the bulk of the current celiac disease drug studies are focusing on treatments to be used in addition to the gluten-free diet to protect those of us with celiac from damage from gluten cross-contamination. I wrote about some potential future celiac disese treatments in my post from last October.

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Springtime Celiac Musings

9 comments April 17, 2015

It seems like every 3 to 4 months that I hit a rough patch in which it is challenging to find time to dedicate to writing and posting on this page. Sometimes it’s because of work demands, often it’s because of family demands, and right now it’s multifactorial (work, family, planning for our big upcoming move, brain fog, etc). There are some pretty cool things that I’d like to share with you, though, so here goes:

If you can get your hands on the National Institute of Health’s Medline Plus Magazine, there is a beautifully written article about celiac disease featuring Jennifer Esposito. Although the Spring 2015 issue is not yet up on their website, it should be soon. I tried to take a photo of it with my phone but couldn't get it to upload properly. This supports that I need professional help with this page :)

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Which Children Should Be Tested For Celiac Disease?

30 comments March 31, 2015

This is a question that seems to come up again and again. I have personally struggled with figuring this out over the last few years as well, so I have read as much as I can about the topic of screening during childhood.

Earlier today I read a Medscape article titled “Celiac Disease: Which Children Should be Tested?” which was written by Lara C. Pullen PhD, and published online on March 23, 2015. In this article, Dr. Pullan does a great job of summarizing the current evidence and opinions about which groups of children should be screened/tested for celiac disease, and emphasizes that this is important because many children with celiac disease do not have symptoms.

 

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Book Review: Understanding Celiac Disease

8 comments March 17, 2015

I came across Naheed Ali, MD’s book, Understanding Celiac Disease: An Introduction for Patients and Caregivers, in late 2014. I promptly downloaded a copy onto my Ipad, but I have been so busy that I was not able to read it until a few weeks ago. It is a comprehensive, evidence-based review of the history, pathophysiology, related disorders, research, ramifications, diagnosis, and treatment of celiac disease.

Chapter 7, titled the “Mental Outcomes of Celiac Disease” was one of the most detailed reviews I have come across of all of the psychiatric and behavioral problems that have been associated with celiac disease. These include problems with cognition (aka “brain fog”), hyperactivity, eating disorders, anxiety, dementia, and attention deficit hyperactivity disorder.

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Reflections on five years of living with celiac disease

40 comments February 20, 2015

It’s been just about 5 years since I was diagnosed with celiac disease—a disease that I learned about during my second year of medical school and never in a million years imagined I would eventually be diagnosed with.

As I reflect on my gluten free journey, I realize how much I have learned, adapted, and done my best to live with this life-changing diagnosis. When I was diagnosed in 2010 there were many things I did not know or anticipate:

…I had no idea that I’d never again live a single day of my life without having to really think about and plan out ahead of time what and where I was going to eat. I had always taken food for granted and eaten whatever I wanted wherever I wanted.

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A Case of Temporary Gluten Intolerance Following an Infection

11 comments February 04, 2015

I never in a million years would ever have guessed that I’d be writing about gastroenteritis (known to many as the “stomach flu”) for fun back when I was a medical student. But, I never would have guessed that I would eventually be diagnosed with celiac disease back when I was student either. Needless to say, I came across a really interesting case report on pubmed.gov called “Post gastroenteritis gluten intolerance” that was published last month.

Celiac researchers have hypothesized that viral infections may trigger celiac disease in some cases. This case report details a 32 year old, previously healthy woman who developed chronic diarrhea after an episode of gastroenteritis. Her tests for celiac disease (TTG antibodies and endoscopy with small bowel biopsies) were negative. After other causes of chronic diarrhea were ruled out, she was given a working diagnosis of post infectious irritable bowel syndrome (IBS).  She was treated with a gluten free diet and her IBS symptoms markedly improved. She was able to reintroduce gluten a few months later, without a return of diarrhea, leading her to be ultimately diagnosed with post infectious gluten intolerance.

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Celiac Disease and Depression

16 comments January 27, 2015

I have had depression on my mind as I approach the anniversary of my father's death by suicide. Like my father, I have suffered from depression in the past and the severe postpartum depressive episode that I experienced after I gave birth to my oldest daughter was one of the scariest experiences of my life.

I intended to write a post about the link between celiac disease and depression shortly after I started this blog in 2012, but I never got around to it. I was, unfortunately, not able to find all of the research articles that I had pulled at the time in anticipation of writing about the topic, so tonight I re-reviewed the literature.

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Celiac Disease Pathology

24 comments January 13, 2015

Dr. John Hart gave a lecture about the pathology of celiac disease during the celiac preceptorship that I attended at the University of Chicago last month. Dr. Hart is one of the world’s experts in this field. Pathology encompasses the abnormal findings that can be seen on duodenal (small bowel) biopsy in patients with celiac disease.  As a disclaimer, I have not really studied pathology since my first two years of medical school (1999-2001). Nor did I ever imagine that I'd be writing about it...

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